Showing posts with label journey. Show all posts
Showing posts with label journey. Show all posts

Sunday, June 11, 2017

Foggy like an October Morning

I am finally learning to accept it: my new normal. I had always heard about people "finding" their "new normal" after cancer treatment, but I always figured life would just go back to being exactly how it was before. But it never does, as you come out of it a different person than you were going into it. I tend to get hung up on the few frustrating things, instead of focusing on all the good things (of which there are MANY, thankfully).

For me, the most frustrating thing is the brain fog! Before I started cancer treatment, I did have some brain fog from my autoimmune issues, but nothing like it is now. I had been doing well, until I started Tamoxifen again a few weeks ago (thankfully I am not crazy depressed this time - praise the Lord!). I feel like my body is running around doing things, going through the motions, yet my brain is stuck in molasses. Good days (no brain fog) feel like my thoughts are running through water, they just move in and out and around with little resistance, and are pretty easy to control. Bad days (very foggy) make me feel like I have Jello for a brain - thoughts come in and get stuck. Very stuck. And when I can manage to think through things, they leave a sticky trail like a slug...which is not only gross, but gunks up my brain more.

Ok that was kinda random...but anyways! This graphic pretty much sums it up:


It frustrates me because it slows me down sometimes, and anyone who knows me knows that I DESPISE moving slow, going slow, or anything slow in general. I like speed and efficiency (I'm a typical goat Capricorn, ain't I? lol). Thankfully all my friends and family say they don't notice it (or they are just being REALLY nice), which is AWESOME; but I still feel it, and it is frustrating to me, as it slows me down. I can't explain things as well as I would like to. I am not as talkative as I used to be (which may be a good thing! lol). I get overwhelmed and overstimulated VERY easily. Etc etc...

Outside of my frustrations with  myself at work, there is one thing that drives me nuts about the brain fog more than any other: my social skills. I have a LOT more social anxieties than I used to (which I didn't really have any previously). Going to the grocery store gives me great anxiety - for no good reason. As with many of my anxieties, I cannot pinpoint why these things give me anxiety, I just know they do. I manage to work through them, and they are getting easier with time (and special thanks to Austin for helping me navigate the scary grocery store, and loading up the items onto the conveyor belt for me...that is the scariest part! #facepalm).

The other aspect of my "social skills" that drives me nuts is my communication skills...this was never something I was great at anyways lol! I've always been terrible about returning phone calls (as in, I rarely return them), but I used to be pretty good about returning texts, emails, FB messages, etc. Nowadays, I am not even good about that! I often compose or reply to a message in my head, but never actually send it. Some days, I am too tired, and I will try to think of a response, and I just can't form the words; and my perfectionist self doesn't want to just send a hurried response. Other days, I simply forget. While I used to be able to just quickly reply, now days all my responses are typically pretty well thought out. Which is probably a good thing, but it slows me down.

Anyways, I just want you all to know that you are often in my thoughts, and always in my prayers. And thanks for always being supportive and understanding...I have the best family, friends, and coworkers a girl could have!!!  <3










Saturday, July 2, 2016

Patience is a Virtue...That I Still Need to Learn! (scroll to bottom for pics and a quick update)

Oh patience!  Patience is defined (via Google) as: The capacity to accept or tolerate delay, trouble, or suffering without getting angry or upset."  I feel like I have done pretty well with being patient in life, up until this week.  I've been frustrated before, but yesterday found me VERY IMPATIENT.  I had several things I wanted to accomplish, and I had determined this to-do list without regard for my current condition.  My condition is mainly just mental and physical exhaustion from radiation and chemo, but it's aggravated by the major skin irritation on my left side, breathing difficulties (everything major has been ruled out thankfully, but the feeling of not being able to breathe and like I am suffocating at times induces great anxiety in my), etc.  I am usually able to remind myself that all this is only temporary, and that this too shall pass; but yesterday I failed!  

I've been doing an online Bible study (which has been AMAZING, thank you Tiffany!) that has reminded me and encouraged me to get in The Word every day, as it is our spiritual daily bread.  I've written a devotional on this topic, I should KNOW to be in The Word every day!  But yesterday I didn't consume my spiritual daily bread.  I decided I wanted to go ahead and check something off my to-do list, which was go for a walk and stretch.  

Now, exercise is good (and it felt GREAT), but I did not leave myself enough time to open my Bible and read.  Everything was fine until I got to my radiation appointment at 8:45, and they were running 30 minutes behind.  This shouldn't even have been an issue for me, but because I had made so many plans for myself, I let it stress me out.  A LOT.  Which threw my entire day off, and resulted in a lovely panic attack (even after a couple Xanax).  I can't help but wonder if I could have prevented this by spending even just a few minutes with God, in His Word, before starting my day?  The endorphin rush from my workout was awesome, but it pales in comparison to the peace, clarity, and joy we receive from spending time in The Word.  

Also, I MAY have had an unrealistic amount of to-do's on my list...a big surprise coming from me, right? ;)  

This is where I get frustrated.  I am overall feeling SO MUCH BETTER than just a few months ago, but I'm surprised at how fatigued and brain-fogged radiation can make you!  I figured I would just sail through radiation (sound familiar?  like how I thought I'd sail through chemo? lol); but in reality it's a big toll on the body and I need to give myself the time to heal.  Fortunately, I have a lot of motivation and drive to accomplish many things; unfortunately, I am impatient about all the things I want to accomplish.  I want to start working on them all NOW!!!  I also get frustrated because I haven't been able to work full time.  Fortunately, I have an AMAZING boss who allows me to work as much or as little as I can, and co-workers who are so supportive (and I can't imagine doing this journey without any of my office peeps!); unfortunately, I am a Type-A control freak who wants everything done perfectly by the end of every day.  Which is IMPOSSIBLE in a dental office as it is, and even more impossible with my current state of mind and being.  


Update: Overall I am doing very well, all things considered.  My hair is growing back nicely!  I only have 4 radiation treatments left, and I am so thankful for that!  My skin burns are not bad, just a couple of spots where the skin is slightly broken and irritated.  I've "graduated" to only having to see my medical oncologist every 6 weeks now, instead of every 3 weeks (I will still continue to do Herceptin infusions every 3 weeks).  At my next appointment with her, I will start Tamoxifen; the hormone-blocker I'm slated to be on for 10 years.  I have to admit I'm nervous about this for 2 reasons: 1. possible side effects, and 2. 10 YEARS.  TEN. YEARS.  I'm scared to commit to that!  Although I can always stop if if I chose to.  And the commitment issue might also explain my recent single-ness...but I've also come to realize that even if I am single forever, that is ok because I DO have so many things I want to accomplish, people I want to help, and things I want to do and see!  I now always pray that God's will be done in my life, because I've finally come to fully understand that God's will is always the best for our lives.  It only took me 32 years, but hey better now than never! :)    
The burn here isn't too bad, it's mostly just itchy...and seatbelts irritate it!!!   And that's my port on my right side :) 




Under my left axilla, these little marks aren't big (thankfully!) but they are deep and they are INCREDIBLY tender (I think this is part of my insomnia...can't get comfortable)




All dressed up for the Making Strides for Breast Cancer photo shoot!!!  :D  




Snapped this pic on National Selfie Day...I still get goosebumps every time I look at it, or even think of it!  God finally got my attention...I'm following Him harder than ever!!!  



Thank you SO MUCH for reading, and God bless!!!  Hope everyone has a very safe and happy 4th of July!!!  :)  


Thursday, June 9, 2016

Cast ALL Your Anxiety...For You are Loved!

As I was reading my Bible this morning, 1 Peter 5:7 really jumped out at me.  This is a verse I have read many times, and it is a scripture that is often quoted:

"Cast all your anxiety on him because he cares for you."

This has always been a reassuring verse, one I've kept near and dear to my heart.  But today what struck me is that is says cast ALL your anxiety on him.  Not just some, but ALL.  Not just the big things you worry about, but the little things too; and especially the things that you really want to hold on to.  Some things are just so tough to turn over to God!  However difficult, we must turn over ALL our anxiety, fears, worries, and concerns over to him.  That financial burden you don't know how you will manage.  That relationship that, despite great effort, is still not working out.  That health problem that seems impossible to heal from.  That child that still heading down a bad path.  That addiction you can't control.  Whatever your anxieties are, turn them ALL over to God.  Even the little daily things like coordinating who is going to get the kids on time to dance or soccer practice?  Did the electric bill get paid (thank goodness for auto pay nowadays! lol)?  Is that age spot on my face seriously getting bigger by the day?!? Do I REALLY want to eat that doughnut in the break room that's been taunting me all day?!?!?!?  (The answer to that question, however, is ALWAYS yes!  lol j/k :)  How lucky we are to have the luxury of turning all our stress over to him!  

The other thing that stood out to me is that the verse says to cast all our anxiety on him BECAUSE HE CARES FOR YOU.  He loves YOU!  He loves you so much that he is willing to take all those things that stress you out and leave you depleted onto himself.  Even despite all our shortcomings and human failures, he wants to help you relax, enjoy life, and be joyful in him.  There is no greater love than that!  When we turn everything over to God, we can focus on our relationship with him, our relationships with others, and spreading his light throughout the world.  Think of how much better you focus when you aren't feeling stressed out, versus when you are super anxious.  So don't wait, turn it ALL over today in prayer - because you are LOVED!!!  

Thank you for reading, God bless!  <3 

Wednesday, September 30, 2015

Conva-WHAT?!?

Today was the appointment I have been most anxiously awaiting - meeting with my medical oncologist.  Barely a week after my diagnosis, I was still wrapping my head around (and trying to accept) the fact that I have cancer.  I knew I would have lots of decisions to make, but I did not realize how many decisions there would be; nor did I know how much they would impact my future, and the lives of those closest to me.

Under Construction Masectomy Recovery T-shirtFirst there is surgery.  Fortunately, there are several options for surgeries, all of which have pros and cons.  I am currently leaning towards bilateral mastectomy with reconstruction, which all of my doctors have fully supported (those reasons would fill up another entire blog post of its own).  While I had always thought it would be relatively easy to simply say, "Yes!  Take my boobs and give me new, fun ones!" it has not been easy.  I am still praying over this decision, asking for God's guidance and peace.  2 Corinthians 5:1-7 has been very helpful:



For we know that if the earthly tent we live in is destroyed, we have a building from God, an eternal house in heaven, not built by human hands.  Meanwhile we groan, longing to be clothed instead with our heavenly dwelling, because when we are clothed, we will not be found naked.  For while we are in this tent, we groan and are burdened, because we do not wish to be unclothed but to be clothed instead with our heavenly dwelling, so that what is mortal may be swallowed up by life.  Now the one who has fashioned us for this very purpose is God, who has given us the Spirit as a deposit, guaranteeing what is to come.  Therefore we are always confident and know that as long as we are at home in the body we are away from the Lord.  For we live by faith, not by sight.  (NIV) 

I will not dwell in this body for all eternity, only for a short while here on earth; therefore I can have no fear in removing any body parts that may prevent me from living the life God has blessed me with to the fullest.  We are here to do His work, and I can't have dysfunctional boobs getting in the way of that! :) 

Next there is all the treatments after surgery.  My oncologist said they definitely want me to do chemo.  We asked when the treatments would begin.  The doctor said, "After surgery, and after your have had a period of convalescence (approximately four weeks), we will begin treatment."  

Convalescence???  As in, convalesce???  What the heck does THAT mean?!?!?

I had to ask for clarification, as my early-onset chemo brain had lost all meaning to this word.  All I could think of was "convoluted" and "essence," and I wasn't able to make sense of these.  Of course she explained it means a period of time spent recovering from an illness or surgery.  AKA recuperating.  

AKA recovering.  Ok I know what that means!

So after I'm recovered from surgery, then we can start chemo.  While I am thankful there is chemo to help me survive, I am SCARED!!!   I will have a port placed, which is better than regular IV's.  I will lose my hair, which makes me VERY anxious; however I am actually kind of excited I can wear cute winter hats and not worry about my hair becoming smushed!  Plus, that is a legit reason to go shopping!!!  My parents can't argue that one with me! ;)  I've always known that with chemo, you can lose ALL your hair; but it just dawned on me today that my eyelashes and my eyebrows are composed of hair!  How in the WORLD am I supposed to stay warm all winter, especially having Raynauds?!  

Cue more shopping!  ;)  

Losing my hair and worry about side affects are my biggest concerns right now.  Fortunetly, I know that with God (and not to mention my AWESOME support network - I love you ALL!!!) I can get through it!  

The third thing is something I did not expect, or did not think about being an issue when I got my diagnosis.  The subject of fertility.  I never thought about chemo affecting my ability to have kids.  I now suddenly feel pressured to quickly figure out if having children is something I truly want to do.  I've always joked about how I don't want kids, but I've never been at a place in my life where I had enough financial/emotional/etc stability to have them; not to mention I wanted to experience just marriage first, before starting a family.  God has never really put it on my heart to have children, so why am I even worried?  What if I choose not to have children, go through chemo without freezing eggs or anything (I have no idea what all they do to help chemo patients have kids in the future), then later in life regret NOT having children?  Or regret not even TRYING to have children?  I have never actually considered the thought of starting a family, because it seemed so far away, and I wanted to make sure I was married and had stability in this crazy world before bringing a tiny human into it.  

But, that's where prayer comes in.  I am so thankful for a God who does love us, guide us, and give us peace.  I am also thankful for YOU!!!  Your love, support, and prayers (plus God's goodness) are what is keeping me going.  Blessings to you!!!  

Tuesday, September 22, 2015

Diagnose

Diagnosing...that's what we were taught to do in chiropractic school. I was the one who was supposed to be diagnosing others, but I've now found myself to be the one diagnosed.

With the "C-word."

I knew women my age could get breast cancer, but surely not me, and surely not at age 31. I mean that was so rare, no way it could be me...right? But it is me. And it turns out that it's ok.

In just 24 hours since getting the call yesterday I've already learned so much about myself, my family, people, and life.  I'm already stronger than I ever thought I could be. I always thought I couldn't handle even hearing that I had cancer. But I went to work today, scheduled appointments for myself, and had a lot of laughs. My family has amazed me. They have been incredibly supportive, and stronger than I could ever have hoped. I've discovered that people are amazing, and I think needed to be reminded of that. I have literally been blown away by all the prayers and gifts and well wishes I have received. I've always believed in prayer, but now I really believe in the POWER of prayer. What is surprising to me is that have never felt so much peace in my life as what I feel today. I have never felt as thankful as I feel today, nor as blessed.

I can't thank you all enough for all you have done already, but please know everything is appreciated. Tomorrow I am meeting with the surgeon, and I am so incredibly thankful that my mommy is able to come with me. In the meantime...have you checked yourself yet??? 😊 God bless!!!